MOM IS HOME FROM THE HOSPITAL

They released mom yesterday (Saturday). All her blood levels are back to where they should be, and they are staying there! That is good as it means the chemo is not still eating them.

However, mom went in for low blood cells not pain, so tell me why they kept her so doped up? You have to understand that we had 3 specialists seeing her while she was in the hospital and NONE of them were on the same page. Am I frustrated...hell yes! The pain specialist ordered a nerve block to be done and they did it, but it takes a day or two to kick in, and they kept giving her pain meds every 4-6 hours.
It would take me forever to write all that went on but long story short she was so doped up that they asked that we have someone stay with her at night as she would get out of bed by herself and that would not be a good thing. They said they could move her to a room closer to the nurse’s station or someone could stay with her. Well she was already hearing voices why would we want to put her closer to commotion? Dad stayed Thursday and I stayed Friday.

When Saturday morning came I was so frustrated as she was weak, totally bloated from the IV fluids and sleeping all the time, but everything else was good. All her levels were back up ect so why did they need to keep her? Well, when one of the Dr's came in that morning I asked and pushed and long story short they released her.

Now, just an FYI when you have a loved one in the hospital and sick like mom is someone needs to be there all the time or for the most part. Why? Because the patient needs an advocate! Why do they ask a question to someone who is so medicated and does not give true responses? So if you learn anything from this post, make sure if you have a loved one that is sick in the hospital make sure you have people there all the time. Oh, and the ones that are familiar with what is going on what meds they are on ect!

This is where we stand now, for now no more Chemo! I am sure she will have follow up with the Zang due to being in the trial and such but she was released with Hospice and today Dad signed the paper work to begin Hospice. Tomorrow we have the case manager, which will be her nurse that will come in and meet us and go over some things and do a more extensive assessment than the lady did today.

I really feel good about this as we have a contact right at our finger tips. As for mom, I really can’t say for sure where she is right now. Her pain has decreased due to the pain block but she is constantly nauseous and taking those meds every 4 hours which makes her tired therefore she sleeps all the time. When she does have a coherent moment, she is frustrated and per her words “I wish I would just die "!

Now you have to remember ALL this has been because of the Chemo. But there is a point when we can not keep blaming it on the Chemo. According to the Dr who released us she said we needed to give it about a week and if symptoms are still there and mom is not back to where she was before the Chemo then we can assume it is the cancer.

I guess we will give it some more time and hopefully she will come out of these chemo side effects and all the drugs that the hospital pumped into her and we can see clearly where we are in this process.

For now I just ask that you all pray for recoupment and strength for ALL of us!!! Thanks so much for all your support!