Sorry I have not posted but when your work requires you to be on the computer all day, sometimes it's hard to get back on at the end of the day!
The major side effect mom is having is the fatigue and it was the most extreme yesterday. I would say yesterday she was the most tired and hasnt eaten that much. Over the weekend, she did good eating, she did not drink as much I would have liked to have seen her drink and she carried a low grade fever with some chills. The fever spiked over the "call you Dr if" your temp goes over 100.5. That was Saturday night and it went to like 101.1 but within the hour was down to 99.8.
We told Sarah about the fever and they did have her come in yesterday. They did blood work and a chest xray and it all looked fine. They also drew some blood from her port which they will run cultures on to see if there is any bacteria or whatever. She was scheduled to have another treatment tomorrow but they changed it to Thursday since they saw how tired and fatigued she was.
I only saw mom for about 2 minutes this evening, then she went back up to bed. I went up and laid down with her for a little bit and she did seem to be more alert than yesterday! So we could be on the up swing,for what a day or two, then of course its time for the next treatment!
This makes me think of that song by Chumbawamba, it keeps running thru my head "I get knocked down but I get up again" and if I could just get mom to push herself to fulfill the rest of those lyrics which are "Your never gonna keep me down"! Hmmm maybe I should record it and play it over and over when she is asleep?
I am sure tomorrow will be better! I dont want to push her but then I do want to, but when? I guess I will just have to follow my instincts as to when to and when not to. Wish me luck on that one lol.
I will keep you posted after this next treatment and stay in prayer that it will be easier and not so much fatigue. I do know some of the anxiety will not be present as she has already been thru it and knows what to expect. And then there will be one more treatment the next week and she will have 2 weeks off, then time for cycle 2!
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